About this trial
Last updated 2 years ago
Study ID
GEPHARD
Status
Recruiting
Type
Observational [Patient Registry]
Placebo
No
Accepting
Up to 18 Years
All
Not accepting
Healthy Volunteers
Trial Timing
Started 9 years ago
What is this trial about?
The German Pediatric Hemophilia Research Database will collect data on the prophylactic and
therapeutic use of factor concentrates, complications, outcome measures (joint scores, QoL)
and living circumstances in newly diagnosed children with hemophilia.
What are the participation requirements?
Inclusion Criteria
- hemophilia A or B
- FVIII/FIX <1% to 25%
- informed consent
Exclusion Criteria
- no consent