STUDY00014689

About this trial

Last updated 3 years ago

Study ID

STUDY00014689

Status

Recruiting

Type

Interventional

Phase

N/A

Placebo

Accepting

18+ Years

All

Trial Timing

Started 3 years ago

Compared to the general population, individuals from underserved communities are more likely to receive low quality end-of-life care and unwanted, costly and burdensome treatments due in part to a lack of advance care planning (ACP; the process of discussing wishes for end-of-life care with loved ones/clinicians and documenting them in advance directives). This study will use existing, trusted, and respected social networks to evaluate two conversation-based tools intended to engage underserved individuals in discussions about end-of-life issue and motivate them to carry out ACP behaviors. Through this study, investigators will learn how best to engage underserved populations in ACP so as to: 1) increase the likelihood that patients from underserved communities will receive high-quality end-of-life care; 2) address health disparities related to end-of-life treatments; and 3) reduce unnecessary suffering for patients and their families.

Inclusion Criteria Community Hosts

1. Ability to recruit 20 individuals from underserved populations to attend a community
event

2. Experience hosting a community event

3. Experience working with underserved populations

4. Participation in a series of mandatory live study-related web-based trainings

5. Completes a research site agreement

Research Participants

1. Adults over the age of 18 years old in underserved populations

2. Able to speak and read English and/or Spanish

3. Have not completed an AD within the previous 5 years

4. All participants regardless of health status

5. Individuals from the same household can enroll

Exclusion Criteria Community Hosts

1. Inability to recruit 20 individuals from underserved populations

2. Inexperience for hosting a community event

3. Inexperience working with underserved populations

4. Unable to attend a series of mandatory live study-related web-based trainings

5. Do not provide informed consent

6. Do not complete a research site agreement

7. Previously hosted a Hello project event

Research Participants

1. Anyone <18 years of age

2. Anyone not able to speak and read English and/or Spanish

3. Have significant difficulties with hearing or speaking difficulties by self-report

4. Completed an AD in the past 5 years

5. Do not provide informed consent